יום ה׳, 14 בינו׳ | Jerusalem

1° CdLS Conference in Israel (2)

Jerusalem - Israel
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1° CdLS Conference in Israel (2)

זמן ומיקום

14 בינו׳, 10:00 – 14:00
Jerusalem, Jerusalem, Israel

על האירוע

The first conference in Israel on Cornelia de Lange Syndrome

At the event, we will be honored with the presence of experts from the Scientific Advisory Council (SAC) of

the Worls CdLS Federation

Experts:

Dr. Feliciano Ramos - Pediatrician and Clinical Geneticist

Director of the Scientific Advisory Committee of the Spanish Association of Families with CdLS and the Advisory Council

Scientific of the World Federation of CdLS

Dr. Angelo Slicorni - Pediatrician and geneticist

Medical Director of the CdLS Italy Support Group, former President of the Scientific AdviserCouncil of the World Federation CdLS

Date: Thursday-Friday 31 and 31 February

Place: Community Center Est Talpyiot - Oley Hagardon Street 13, Jerusalem

To: Parents/ Legal guardians of CdLS persons & doctors and caregiver involve with CdLS persons.

Organizer: Hodaya Harel

For more details, please contact us via email or visit us at: //https://www.facebook.com/CdLSIsrael

Programm

Thursday 13/02/2020

8:30 Gathering, registration and opening remarks

9:00 Dr. Feliciano Ramos, Dr. Angelo Slicorni

Cornelia de Lange Syndrome, "From Training to Characte" - All We Parents, and Teams

The caregivers of our children need to know about the syndrome.

- Clinical characteristics)

- Genetic adaptations and genotype / phenotype

Neuropsychological problems / behavior.

10:30 Coffee breack

10:45 "Shedding Light"

  • Gastro-Esophageal Reflux Disease GERD
  • Growth problems) including growth hormone therapy
  • Adults with CdLS
  • Recent and future studies
  • Present guidelines

12:15 Questions & Answers

12:30 Lunch

14:00 - 16:30 Families Individual counseling with the experts

Our sponsors

Special thanks to the honorable :

Mr. Moshe Leon - Mayor of Jerusalem

Mr. Yehuda Ben-Yosef - Jerusalem Municipality

Mr. Yoav Rothschild - Director of the Talpiot East Community Administration

לחלוק

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